Tamara Milagre

Tamara Hussong Milagre is a distinguished leader in hereditary cancer advocacy, dedicated to improving the lives of families affected by Hereditary Cancer Syndromes. As the founder of “Associação EVITA – Cancro Hereditário” (=AVOID Hereditary Cancer) in 2011, she has pioneered efforts to support and empower patients within this community. At the European level, Tamara serves as a prominent representative of the European Patient Advocate Group within the esteemed European Reference Network GENTURIS, focusing on Genetic Tumour Risk Syndromes. Her involvement extends to critical areas such as “Hereditary Breast and Ovarian Cancer (HBOC)” and pivotal taskforces on “Organization of Care” and “Education, Training and Development.” Currently, Tamara is actively engaged in the core group for guidelines on “Counselling on Reproductive Options for GENTURIS Patients,” aimed at providing comprehensive support to patients within the GENTURIS network. Tamara’s expertise is enriched through participation in prestigious educational programs, including the Master Class of the European School of Oncology (ESO) and the rigorous EUPATI course. She graduated from the EURORDIS Leadership School on Healthcare & Research in 2019, acquiring leadership skills and profound insights into healthcare and research dynamics. Beyond her advocacy efforts, Tamara collaborates closely with Infarmed, the Portuguese medicine’s agency, and engages in key multi-stakeholder platforms such as the European Multi-Stakeholder Sounding Board of EFPIA Oncology Platform and European Cancer Organisation, reinforcing her global influence. At the national level, Tamara drives progress as a founding member of the dedicated working group for Hereditary Cancer Syndromes within the Portuguese Society of Oncology. She actively contributes to initiatives focused on “Early Detection” and genomic medicine through her involvement in various organizations and initiatives, including the Portuguese Cancer Mission Hub’s Stakeholder Group and the PT_MedGen initiative. Tamara’s exceptional contributions to hereditary cancer advocacy were officially recognized in November 2020 when she received the prestigious Medal of Scientific Merit from the Portuguese Minister of Science. Her unwavering dedication and global impact highlight her as a true influencer in the field.